A case study of an emerging community-based early hearing detection and intervention program: part I. Parents'

Jeffrey L Danhauer1, Carole E Johnson

  • 1University of California Santa Barbara, Santa Barbara, CA 93106, USA. danhauer@speech.ucsb.edu

Insights

Parental compliance for infant hearing screening was excellent, but follow-through for intervention services needs improvement. Early diagnosis and intervention are crucial for babies with hearing loss.

Area of Science:

  • Pediatric audiology
  • Public health programs
  • Early intervention services

Background:

  • Community-based early hearing detection and intervention (EHDI) programs are emerging.
  • Parental compliance is key to the success of EHDI programs.
  • Understanding compliance at various service levels is essential for program assessment.

Purpose of the Study:

  • To assess parental compliance in accessing services for infants within an EHDI program.
  • To examine compliance across five distinct stages, from referral to follow-up.
  • To identify potential barriers or facilitators to service utilization.

Main Methods:

  • Retrospective chart review of 51 infants referred from a hospital newborn hearing screening program.
  • Data collected over a 3-year period (March 2000 - February 2003).
  • Compliance defined as parents following professional recommendations and appointments for hearing healthcare.

Main Results:

  • 100% compliance for initial inpatient and outpatient rescreening.
  • All parents of infants diagnosed with hearing loss complied, with diagnosis by 3 months and intervention by 6 months.
  • Compliance decreased during the referral process; only 50% of eligible infants received hearing aids and habilitative intervention by 6 months.

Conclusions:

  • Initial and follow-up hearing screening compliance met national benchmarks.
  • Significant room for improvement exists in parental compliance for intervention services.
  • Optimizing the referral and intervention pathway is critical for maximizing EHDI program effectiveness.
Abstract

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