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Related Experiment Videos

Developing inclusive partnerships: user-defined outcomes, networking and knowledge--a case study.

Peter Beresford1, Fran Branfield

  • 1Centre for Citizen Participation, Brunel University, Osterley Campus, Isleworth, Middlesex, UK. peter.beresford@brunel.ac.uk

Health & Social Care in the Community
|August 22, 2006
PubMed
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Service user involvement in UK health and social care is crucial. Studies show users have unique quality outcome perspectives, yet limited influence, highlighting the need for inclusive partnerships.

Area of Science:

  • Health Services Research
  • Social Policy
  • Patient Engagement

Background:

  • UK health and social care policy emphasizes quality outcomes and service user involvement.
  • These two developments have largely been treated as separate policy areas.
  • A potential disconnect exists between policy-maker priorities and service user preferences for quality.

Purpose of the Study:

  • To explore service user perspectives on quality and outcomes in health and social care.
  • To investigate the impact of service users on defining and influencing quality outcomes.
  • To identify barriers and facilitators for effective user involvement in policy development.

Main Methods:

  • Analysis of findings from three projects conducted by Shaping Our Lives.

Related Experiment Videos

  • Examination of service user concepts of quality and outcome measures.
  • Assessment of networking and knowledge-sharing dynamics among user organizations.

    • Main Results:

    • Service user conceptions of quality and outcomes significantly differ from current measures.
    • Service users can propose sophisticated models for outcome measures when involved.
    • Service users currently have minimal influence on defining and impacting quality outcomes.
    • Networking and knowledge sharing are vital for user influence, but face obstacles.

    Conclusions:

    • Effective partnerships require genuine service user involvement as key stakeholders.
    • Inclusive partnerships and user-centered quality measures are essential for health and social care reform.
    • Two proposals are presented to advance inclusive partnerships and user-defined quality measures.