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Caring for children with learning disabilities who present problem behaviours: a maternal perspective.
Robert F Johnson1, Michelle O'Reilly, Panos Vostanis
1Leicestershire Child and Adolescent Mental Health Service, Leicester, UK.
Caring for children with learning disabilities and severe problem behaviors creates secondary stressors for mothers, impacting their well-being. These stressors, including social isolation and self-blame, significantly affect maternal mental health.
Area of Science:
- Psychology
- Child Development
- Family Studies
Background:
- Maternal stress is a significant factor in the well-being of families with children with learning disabilities.
- Problem behaviors in children with learning disabilities can exacerbate parental stress and coping challenges.
Purpose of the Study:
- To analyze maternal perceptions of caring for children with learning disabilities and severe problem behaviors.
- To identify secondary stressors impacting maternal well-being within this population.
Main Methods:
- Utilized a theoretical cognitive model of stress and coping.
- Sampled 18 families with children aged 5-15 with moderate-to-severe learning disabilities and severe problem behaviors.
- Conducted home interviews with primary carers, analyzed data using grounded theory.
Main Results:
- Identified key secondary stressors: social isolation, conflict, lifestyle limitations, and self-blame.
- Physical aggression was the primary behavioral problem in 13 out of 18 children.
- These secondary stressors significantly impact maternal coping resources.
Conclusions:
- Secondary stressors can be as detrimental to maternal well-being as the child's problem behaviors.
- Interventions should address not only the child's behaviors but also the environmental and psychological stressors on parents.
- Understanding these factors is crucial for supporting maternal mental health in families with learning disabilities.
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