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The consent problem within DNA biobanks.

Darren Shickle¹

¹Institute of Health Sciences and Public Health Research, University of Leeds, 71-75 Clarendon Road, Leeds LS2 9PL, UK. d.shickle@leeds.ac.uk

Studies in History and Philosophy of Biological and Biomedical Sciences

|September 19, 2006

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Biobanks collect DNA and health data for research. Blanket consent is used due to future uncertainties, but raises ethical concerns regarding informed consent for genetic research.

Area of Science:

Biobanking and genetic research ethics
Public health and epidemiology

Background:

Prospective biobanks collect DNA, lifestyle, and health data for disease research.
Informed consent is crucial for ethical research, requiring adequate information disclosure.

Purpose of the Study:

To examine the challenges of obtaining informed consent in large prospective biobanks.
To discuss the ethical implications of 'blanket consent' and consent waivers in biobanking.

Main Methods:

Analysis of ethical considerations in biobanking consent processes.
Review of existing literature on informed consent for large-scale genetic and health data repositories.

Main Results:

Detailed disclosure of future research is impossible at biobank recruitment.

Related Experiment Videos

The 'blanket consent' approach, while practical, raises ethical concerns about participant autonomy.

Consent waivers offer an alternative but require careful implementation.

Conclusions:

Balancing research needs with ethical principles in biobanking consent is complex.
Alternative consent models like consent waivers require further ethical and practical evaluation.
Ensuring robust ethical oversight is paramount for public trust in biobanking initiatives.