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Early clinical experience with CardioCard - a credit card-sized electronic patient record
Alain M Bernheim1, Beat A Schaer, Christoph Kaufmann
1Division of Cardiology, University Hospital Basel, Switzerland.
Insights
Patients found the CardioCard, a credit card-sized CDROM for cardiac patient data, useful and secure. Limitations included lack of equipment and computer knowledge, not data security concerns.
Area of Science:
- Medical Informatics
- Cardiology
- Patient Data Management
Background:
- CardioCard is a credit card-sized CDROM storing cardiac patient medical information in password-protected PDF format.
- This medium aims to improve patient data accessibility and management post-hospitalization.
Purpose of the Study:
- To assess the acceptance and utility of the CardioCard among cardiac patients.
- To identify factors influencing patient adoption and potential limitations of the technology.
Main Methods:
- A questionnaire was distributed to patients who received CardioCard over one year.
- Data analysis included response rates, patient-reported usefulness, data security concerns, access frequency, and demographic correlations.
- Technical issues and user-related problems were also documented.
Main Results:
- 392 patients returned questionnaires (73% response rate).
- 73% found CardioCard useful, 78% would pay extra, and only 5% worried about data security on the card.
- Usage decreased with age, particularly in older women; 34% experienced technical issues, often due to handling errors.
Conclusions:
- The majority of patients perceive CardioCard as useful and secure.
- Barriers to adoption are primarily related to hardware availability and computer literacy, not data privacy concerns.
- Patient apprehension regarding internet data transmission remains a significant obstacle for online integration.
Questions Under Study:
CardioCard is a CDROM of credit card size containing medical information on cardiac patients. Patient data acquired during hospital stay are stored in PDF format and secured by a password known to patients only. In a consecutive series of patients, we assessed acceptance and utility of this new information medium.
Methods And Results:
A questionnaire was sent to all patients who had received CardioCard over a one-year period. The questionnaire was returned by 392 patients (73%). 44% of patients had the card with them all the time. The majority of patients (73%) considered the CardioCard useful (8% not useful, 19% no statement) and most (78%) would even agree to bear additional costs. Only 5% worried about data security. In contrast, 44% would be concerned of data transmission via internet. During an observation period of 6 (SD 3) months, data were accessed by 27% of patients and 12% of their physicians. The proportion of card users was lower among older patients: < or = 50 years (y), 39%; 51.60 y, 38%; 61.70 y, 26%; >70 y, 16% and particularly among older women: 61.70 y, 9%; >70 y, 5%. Technical problems during data access occurred in 34%, mostly due to incorrect handling.
Conclusions:
A majority of patients considered CardioCard as useful and safe. Lack of hardware equipment or insufficient computer knowledge, but not safety issues were the most important limitations. As patients expressed concerns regarding protection of privacy if data were accessible via internet, this would remain a strong limiting factor for online use.
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