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Psychosocial effects on caregivers for children on chronic peritoneal dialysis
1Department of Pediatrics, Mackay Memorial Hospital, Taipei, Taiwan. tsaitc2003@yahoo.com.tw
Insights
Caring for children on chronic peritoneal dialysis (CPD) in Taiwan significantly impacts caregivers' mental health and quality of life (QOL). This study highlights the need for psychosocial support for these families.
Area of Science:
- Nephrology
- Psychology
- Public Health
Background:
- Pediatric chronic peritoneal dialysis (CPD) is a critical treatment for renal failure.
- Caregiver well-being is essential for successful pediatric chronic disease management.
- Limited research exists on the psychosocial burden of caring for children on CPD in Taiwan.
Purpose of the Study:
- To investigate the psychosocial effects on caregivers of children undergoing chronic peritoneal dialysis (CPD) in Taiwan.
- To compare the prevalence of probable depression and quality of life (QOL) between caregivers of children on CPD and control groups.
Main Methods:
- A case-control study involving 32 caretakers of children on CPD and 64 controls.
- Utilized the Taiwanese Depression Questionnaire and WHOQOL BRIEF-Taiwan Version.
- Collected demographic and socioeconomic data from participating families.
Main Results:
- Caregivers of children on CPD exhibited a significantly higher prevalence of probable depression (28%) compared to controls (5%).
- The study group reported significantly lower Quality of Life (QOL) scores across four domains.
- A majority of families (66%) had low annual incomes (< US$15,000), and 16% were single-parent households.
Conclusions:
- Caregivers of children on CPD in Taiwan face significant adverse psychosocial effects.
- Psychosocial well-being and QOL are compromised in this population.
- Targeted psychosocial support interventions are crucial for caregivers of children on CPD.
Abstract:
The study was designed to explore the psychosocial effects on caretakers of children in Taiwan on chronic peritoneal dialysis (CPD). This is a case-control study, performed with subjects drawn from eight medical centers. The study group consisted of caretakers of 32 children with renal failure being treated with CPD. For comparison, a control group of caretakers of 64 healthy children as well as the regional Taiwanese studies were used. Two instruments were used to explore the presence of probable depression and quality of life (QOL) of the caretakers: the Taiwanese Depression Questionnaire, and the World Health Organization QOL BRIEF-Taiwan Version. In the study group, only 25% of caregivers had full-time jobs, and 66% of families had an annual income of less than US dollar 15,000. Of the 32 families in the study group, 16% had only a single parent. The prevalence of probable depression was significantly more common in the study group compared with control and referent group (28% vs 5% and 9.44%; P = 0.001). QOL scores in four domains were also significantly lower in the study group. In conclusion, even with the advances of peritoneal dialysis techniques, caring for children on CPD in Taiwan has significant adverse psychosocial effects on the primary caregivers. Attention should be paid to the psycho-social status of the caregivers.
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