Jove
Visualize
Contact Us

Related Experiment Videos

Informed consent: views from Karachi.

Aamir Jafarey1

  • 1Centre of Biomedical Ethics and Culture, Sindh Institute of Urology and Transplantation, Karachi, Pakistan. aamirjafarey@gmail.com

Eastern Mediterranean Health Journal = La Revue De Sante De La Mediterranee Orientale = Al-Majallah Al-Sihhiyah Li-Sharq Al-Mutawassit
|October 14, 2006
PubMed
Summary
This summary is machine-generated.

Related Concept Videos

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

Promoting health research governance in the Eastern Mediterranean Region.

Eastern Mediterranean health journal = La revue de sante de la Mediterranee orientale = al-Majallah al-sihhiyah li-sharq al-mutawassit·2024
Same author

Amid Explosions in Gaza, The Silence from the Bioethics Community is Deafening.

Journal of bioethical inquiry·2024
Same author

Situation analysis of research ethics governance in Pakistan.

Eastern Mediterranean health journal = La revue de sante de la Mediterranee orientale = al-Majallah al-sihhiyah li-sharq al-mutawassit·2023
Same author

Fighting the COVID-19 pandemic: A socio-cultural insight into Pakistan.

Developing world bioethics·2023
Same author

Adapting the ethical review process for COVID-19 research: reviewers' perspectives from Pakistan.

Eastern Mediterranean health journal = La revue de sante de la Mediterranee orientale = al-Majallah al-sihhiyah li-sharq al-mutawassit·2021
Same author

Realigning Pakistan's Bioethics Center during Covid-19.

The Hastings Center report·2020
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Public perceptions of informed consent in medical research reveal a trust-based approach is valued over documentation. Family involvement, particularly male approval, is considered crucial for recruiting women participants.

Area of Science:

  • Medical Ethics
  • Public Health Research
  • Sociology of Science

Background:

  • Informed consent is a cornerstone of ethical medical research.
  • Understanding public perceptions is vital for improving research recruitment and ethical practices.
  • Limited data exists on public views regarding informed consent processes in diverse cultural contexts.

Purpose of the Study:

  • To explore public perceptions of informed consent for medical research in Karachi, Pakistan.
  • To identify cultural factors influencing the informed consent process.
  • To understand participant and community views on documentation and family involvement.

Main Methods:

  • A qualitative study was conducted in Karachi, Pakistan.
  • Data was collected from diverse participant groups including patients, attendants, parents, schoolteachers, and office workers.

Related Experiment Videos

  • Views on the importance, documentation, and cultural considerations of informed consent were gathered.

    • Main Results:

    • Participants recognized informed consent as important but often viewed it as a trust-based rather than a documented process.
    • Both men and women believed approaching women for research requires involving their husbands or fathers.
    • In family decision-making conflicts, male opinions were consistently prioritized over female opinions.

    Conclusions:

    • Public understanding of informed consent in Pakistan emphasizes trust and familial authority.
    • Cultural norms significantly influence consent processes, particularly for women.
    • Ethical guidelines for medical research must be sensitive to local cultural contexts and power dynamics.