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Related Experiment Video

Updated: Jul 19, 2026

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
14:43

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting

Published on: January 12, 2018

Women in developing countries and benefit sharing.

Fatima Alvarez-Castillo1, Dafna Feinholz

  • 1University of the Philippines, Manila, The Philippines.

Developing World Bioethics
|October 14, 2006
PubMed
Summary

Benefit sharing from genetic research must include women

Area of Science:

  • Bioethics
  • Social Justice
  • Gender Studies

Background:

  • Benefit sharing from genetic research often excludes women, particularly in developing nations.
  • Existing social structures perpetuate gender-based inequity, impacting fair benefit distribution.
  • International guidelines acknowledge women's contributions to biodiversity but lack implementation mechanisms for benefit sharing.

Purpose of the Study:

  • To demonstrate that benefit-sharing processes excluding women violate social justice principles.
  • To highlight how gender inequity structurally disadvantages women in accessing research benefits.
  • To advocate for women's inclusion in decision-making and benefit distribution.

Main Methods:

  • Analysis of benefit-sharing frameworks in genetic research.
Keywords:
Biomedical and Behavioral ResearchGenetics and ReproductionHuman Genome Organization (HUGO)United Nations Convention on Biological Diversity

Related Experiment Videos

Last Updated: Jul 19, 2026

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting
14:43

A Novel Method for Involving Women of Color at High Risk for Preterm Birth in Research Priority Setting

Published on: January 12, 2018

  • Examination of social structures and gender-based discrimination.
  • Review of international guidelines, such as the Convention on Biodiversity.
  • Case examples of women's community organizing and benefit achievement.

    • Main Results:

    • Benefit sharing that omits women's representation and participation is socially unjust.
    • Structural discrimination limits women's access to benefits from genetic research.
    • Women possess agency and can organize to achieve community-wide benefits.

    Conclusions:

    • Ensuring women's representation in decision-making is crucial for equitable benefit sharing.
    • Mechanisms are needed to operationalize women's rights to benefit sharing.
    • Women must have guaranteed seats at negotiation tables for benefit-sharing agreements.