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Perceptions of the term palliative care.
Ann Morstad Boldt1, Fouza Yusuf, Bruce P Himelstein
1Department of Pediatrics, Medical College of Wisconsin, Milwaukee, 53226, USA. aboldt@chw.org
Journal of Palliative Medicine
|October 17, 2006
Summary
Understanding pediatric palliative care (PPC) is key. Explaining PPC programs clearly to families and providers improves perceptions and increases use of these vital services.
Area of Science:
- Pediatric healthcare
- Palliative care
- Health communication
Background:
- Pediatric palliative care (PPC) programs aim to improve quality of life for children with serious illnesses.
- Program name and description can influence perceptions and utilization.
Purpose of the Study:
- To assess how parents and healthcare providers perceive a pediatric palliative care program based on its name and description.
Main Methods:
- A survey was conducted at three pediatric healthcare sites.
- Respondents (parents and staff) evaluated program likelihood to use, understanding, and feelings before and after reading descriptions for 'palliative care' vs. 'supportive care'.
Main Results:
- Initially, parents were more likely to use a 'supportive care' program. After reading the description, this difference vanished.
- The name 'palliative care' evoked more negative emotions in parents, but the description improved feelings.
- For staff, reading the description increased likelihood to use the 'palliative care' program; however, staff preferred the 'supportive care' name.
Conclusions:
- Clearer definitions and explanations of PPC services are crucial for improving perceptions.
- Enhanced communication can increase program utilization among families and healthcare providers.
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