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Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
Mega numbers and lobbying for individuals with intellectual disabilities
H Barry Waldman1, Steven P Perlman
1Department of General Dentistry, School of Dental Medicine, SUNY at Stony Brook, NY, USA. hwaldman@notes.cc.sunysb.edu
Abstract:
Lobbying is a competitive effort directed to reaching legislators who are attempting to balance the demands of individuals, organized groups, political parties and the complex economic realities of our times. Unfortunately, the use of all-inclusive "mega numbers" (whether it is the millions of individuals with intellectual disabilities or the billions of dollars for needed services) is difficult for any person to place in proper perspective. As a result, the millions of children and adults with intellectual/developmental disabilities become "just numbers" - not actual people. The need is to somehow personalize these numbers if we are to bring increased attention to these individuals with special needs. Census Bureau and private research foundation data are used to illustrate an approach to personalize the information for individual politicians.
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