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Has patients' involvement in the decision-making process changed over time?
Atie van den Brink-Muinen1, Sandra M van Dulmen, Hanneke C J M de Haes
1NIVEL (Netherlands Institute for Health Services Research), Utrecht, The Netherlands. a.vandenbrink@nivel.nl
Patient involvement in medical decisions increased between 1987 and 2001, particularly for younger individuals. However, older patients showed less involvement, raising questions about their capacity and willingness to participate in shared decision-making.
Area of Science:
- General Practice
- Medical Sociology
- Health Communication
Background:
- The doctor-patient relationship has evolved due to societal changes, emphasizing informed decision-making.
- The Medical Treatment Act (MTA) of 1995 legally established the requirement for informed patient consent.
Purpose of the Study:
- To examine changes in patient involvement in medical decision-making over time.
- To identify factors influencing patient involvement and general practitioner (GP) communication regarding Medical Treatment Act (MTA) issues.
Main Methods:
- Comparative analysis of two cross-sectional Dutch National Surveys of General Practice (1987 and 2001).
- Inclusion of data from 16 GPs and 442 patients (1987) and 142 GPs and 2784 patients (2001).
- Videotaped consultations analyzed using Roter's Interaction Analysis System, supplemented by observer and patient/GP questionnaires; statistical analyses included descriptive and multilevel modeling.
Main Results:
- Most patients felt they received important information, but discrepancies existed in decision-making involvement and information on alternative treatments/side-effects.
- GPs demonstrating more affective communication and providing more information increased patient involvement, especially among younger patients.
- By 2001, informed decision-making improved, with more frequent requests for consent, though GPs less often assessed patient understanding.
Conclusions:
- Patient involvement in decision-making has generally increased, but not uniformly across all aspects or patient groups.
- Older patients showed less increase in involvement, suggesting a need to explore their willingness, capability, and methods for encouragement in shared decision-making.
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