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07:50
Utilization of Ultrasound Guided Tissue-directed Cellular Implantation for the Establishment of Biologically Relevant Metastatic Tumor Xenografts
Published on: May 25, 2018
[Understanding nephroblastoma. Information dedicated to parents and relatives]
S Brusco1, C Bergeron, L Boccon-Gibod
1FNCLCC, Paris, France.
Summary
The SOR SAVOIR PATIENT program provides evidence-based cancer patient information. This guide on nephroblastoma helps patients and families understand the disease and treatment, fostering better healthcare discussions.
Area of Science:
- Oncology
- Patient Education
- Health Communication
Context:
- Growing patient information needs and healthcare professional concerns.
- Established quality criteria for patient information development.
- Collaboration between FNCLCC, cancer centers, and patient advocacy groups.
Purpose:
- To introduce the SOR SAVOIR PATIENT program and its handbook on nephroblastoma.
- To provide accessible, evidence-based information for cancer patients and their families.
- To facilitate communication between patients, families, and healthcare teams.
Summary:
- The SOR SAVOIR PATIENT program, initiated by FNCLCC in 1998, offers patient-centered cancer information.
- The 'Understanding Nephroblastoma' handbook is based on clinical guidelines and expert validation, with patient/family input.
- Information is systematically updated and available through various formats, including leaflets in 'Cancer et Radiothérapie'.
Impact:
- Empowers patients and families with a better understanding of nephroblastoma and its treatment.
- Serves as a concise, evidence-based resource for healthcare professionals.
- Enhances patient-provider communication and shared decision-making in cancer care.
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