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TBase - an Integrated Electronic Health Record and Research Database for Kidney Transplant Recipients

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e-Records in health--preserving our future.

Richard E Scott¹

¹Global e-Health Research and Training Program, Health Telematics Unit, University of Calgary, 3330 Hospital Drive NW, Calgary, Alberta, Canada T2N 4N1. rescott@ucalgary.ca

International Journal of Medical Informatics

|November 14, 2006

Summary

Digital data, including electronic health records (EHRs), faces significant preservation challenges due to rapidly evolving formats and technologies. Urgent policy development is needed to ensure long-term data accessibility for critical healthcare information.

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Area of Science:

Information Science
Digital Preservation
Health Informatics

Background:

Digital formats and storage technologies rapidly become obsolete, threatening data longevity.
Unlike ancient papyrus, modern digital records face imminent loss without proactive preservation strategies.
Constantly changing standards necessitate a reevaluation of digital data archiving.

Purpose of the Study:

To address the urgent need for data preservation strategies for electronic health records (EHRs).
To ensure the long-term accessibility (125+ years) of critical health data for 24/7/365 access.
To prevent data loss and ensure interoperability as EHRs become the primary health record.

Main Methods:

A comprehensive literature review was conducted to identify data preservation challenges and solutions.
Policy recommendations were developed based on identified issues and potential strategies.
Recommendations target practice, program, and decision-making levels across public and private sectors.

Main Results:

Data preservation is a critical barrier to the advancement of e-health and future healthcare systems.
Current awareness of digital data preservation issues within healthcare is notably low.
The study proposes policy recommendations to foster debate and strategic development.

Conclusions:

Effective data preservation is essential for the sustainability of digital health records.
Proactive policy development is crucial to mitigate risks associated with digital data obsolescence.
Addressing data preservation gaps is vital for the future of healthcare systems.