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Published on: January 29, 2016
Alternative methods of treatment used by multiple sclerosis patients in Poland
Waldemar Fryze1, Dagmara Mirowska-Guzel, Małgorzata Wiszniewska
12nd Department of Neurology, Institute of Psychiatry and Neurology, Sobieskiego 9, 02-957 Warsaw, Poland.
Background And Purpose:
Despite the great progress that has been made in medicine, treatment of many chronic diseases, including multiple sclerosis (MS), remains hardly effective. It has been reported that more and more MS patients worldwide are using alternative methods (AM). The aim of the present study is to evaluate this phenomenon in the Polish MS population.
Materials And Methods:
To obtain more data about use of AM in Poland we distributed questionnaires among 210 MS patients treated in 3 hospitals in different regions of our country: Warsaw, Gdansk and Pila.
Results:
210 patients (136 females and 74 males) took part in the study. 68.5% (144 of 210 questioned) declared use of AM now or in the past. The most popular (56%) was Oenothera seed oil, followed by vitamins (49%), and the third most common was massage (34%). There were no significant demographic differences between users and non-users. Neither disease duration nor disability had any impact on the decision to use AM.
Conclusions:
The phenomenon of use of AM by MS patients is not fully understood, but it seems that limited access to so-called immunomodulators, e.g. interferon-b or glatiramer acetate, and limited long-term efficacy are reasons why patients seek other therapies.
Insights
Many multiple sclerosis patients in Poland use alternative therapies alongside conventional treatments. This widespread use of alternative medicine may stem from limited access to or efficacy of standard immunomodulatory drugs.
Area of Science:
- Neurology
- Complementary Medicine
Background:
- Multiple sclerosis (MS) treatment remains challenging, with many patients seeking alternative methods (AM).
- The global trend of AM use is increasingly observed in chronic disease management.
Purpose of the Study:
- To investigate the prevalence and patterns of alternative medicine use among the Polish multiple sclerosis population.
- To understand patient motivations for seeking alternative therapies.
Main Methods:
- A questionnaire-based survey was conducted among 210 multiple sclerosis patients across three Polish hospitals.
- Data collection focused on current and past use of alternative therapies.
Main Results:
- 68.5% of surveyed MS patients reported using AM, either currently or previously.
- Oenothera seed oil (56%), vitamins (49%), and massage (34%) were the most frequently utilized AM.
- No significant differences in AM use were found based on demographics, disease duration, or disability level.
Conclusions:
- The adoption of AM by MS patients in Poland is substantial.
- Limited access to and long-term efficacy of immunomodulators may drive patients towards alternative therapies.
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