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Updated: Jul 18, 2026

A Protocol for Comprehensive Assessment of Bulbar Dysfunction in Amyotrophic Lateral Sclerosis (ALS)
Published on: February 21, 2011
[Breaking bad news during the course of amyotrophic lateral sclerosis: how and when]
1Centre SLA de Paris, Fédération des Maladies du Système Nerveux, Hôpital de la Salpêtrière, 47, boulevard de l'Hôpital, 75793 Paris Cedex 13 Paris.
Abstract:
Operatory procedures can help to break bad news in ALS but the main goal of this unpleasant task stands in the quality of the relationship between the physician and his patient which must be preserved throughout the course of the disease. Plasticity is obviously the best way to characterize the appropriate kind of care in such a variable disease. The caregivers and the psychological factors must also be taken into account. As it is the case for therapeutic research, breaking bad news in ALS requieres a specific know-how which should be ideally performed by specialized teams within the framework of dedicated ALS centers.
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