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Living on borrowed time: experiences in palliative care
Marieke M Groot1, Els W C Derksen, Ben J P Crul
1Centre for Quality of Care Research, Radboud University Nijmegen Medical Centre, The Netherlands. c.groot@kwazo.umcn.nl
Patient Education and Counseling
|December 8, 2006
Summary
Palliative care patients and their husbands experience shifts in interpreting symptoms, their future outlook, and priorities when living on borrowed time. Understanding these themes helps integrate their new reality.
Area of Science:
- Palliative Care Medicine
- Qualitative Research
- Patient Experience
Background:
- Understanding the lived experiences of patients in palliative care is crucial for providing holistic support.
- The concept of 'living on borrowed time' presents unique psychological and existential challenges for patients and their families.
Observation:
- A qualitative single case study explored the experiences of a palliative care patient and her husband.
- In-depth semi-structured interviews were conducted to gather rich data on their perceptions.
- Systematic content analysis was employed to identify recurring themes.
Findings:
- Three primary themes emerged: altered interpretation of physical signs and symptoms, a changed perspective on the future, and modified life choices and priorities.
- These themes highlight the dynamic process of adapting to a life-limiting illness.
- The findings underscore the subjective nature of time and reality in end-of-life care.
Implications:
- The identified themes enhance understanding of the phenomenon of 'living on borrowed time'.
- Further research is needed to refine these themes and their variations.
- Findings can inform the development of supportive care strategies and educational tools for healthcare professionals to assist patients in integrating their 'new reality'.
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