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Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale
Published on: August 25, 2014
NICHD research initiative in newborn screening.
Duane Alexander1, James W Hanson
1National Institute of Child Health and Human Development, Bethesda, Maryland 20892-7510, USA.
Mental Retardation and Developmental Disabilities Research Reviews
|December 22, 2006
Summary
Advancing newborn screening through genetics research requires a dedicated program. This initiative focuses on identifying new conditions, improving treatments, and enhancing education and communication for better infant health outcomes.
Area of Science:
- Genetics
- Public Health
- Medical Research
Background:
- Genetics research advancements offer new possibilities for newborn screening.
- Current newborn screening requires a structured research program for improvement.
Purpose of the Study:
- To outline the National Institute of Child Health and Human Development (NICHD) Research Initiative in Newborn Screening.
- To detail key components and future directions for enhancing newborn screening programs.
Main Methods:
- Developing systematic methods for identifying new screening conditions.
- Testing innovative interventions and treatments for improved outcomes.
- Enhancing provider education and information systems for parents and providers.
Main Results:
- The initiative supports research into new screening criteria and treatments.
- It emphasizes workforce education and improved communication infrastructure.
- It fosters ongoing research and training in newborn screening.
Conclusions:
- The NICHD initiative is crucial for adapting newborn screening to scientific and technological progress.
- Future needs include a national translational research infrastructure and behavioral science research.
- The program aims to continuously evolve based on scientific findings and community needs.
