Development of performance indicators for the primary care management of pediatric epilepsy: expert consensus

Deirdre A Caplin1, Jaya K Rao, Francis Filloux

  • 1Department of Pediatrics, Division of General Pediatrics, University of Utah School of Medicine, Salt Lake City, Utah 84132, USA. deirdre.caplin@hsc.utah.edu

Epilepsia
|January 5, 2007
PubMed

Insights

This study developed 30 performance indicators for pediatric epilepsy care using expert consensus. These indicators cover diagnosis, treatment, and quality of life for children with epilepsy.

Area of Science:

  • Pediatric Neurology
  • Epilepsy Management
  • Healthcare Quality Improvement

Background:

  • Pediatric epilepsy requires standardized evaluation and management strategies.
  • Existing guidelines may not fully address all aspects of care for children with epilepsy.
  • Developing consensus-based performance indicators is crucial for improving care quality.

Purpose of the Study:

  • To establish evidence-based performance indicators for the evaluation and management of pediatric epilepsy.
  • To create a consensus-driven framework for assessing the quality of care in pediatric epilepsy.

Main Methods:

  • A three-step process involving evidence compilation, advisory panel review, and a two-round Delphi process with international experts.
  • Evidence tables were created, and a preliminary set of indicators was drafted by an advisory group.
  • Experts rated indicators on a 5-point scale, with consensus defined by >80% agreement.

Main Results:

  • Thirty performance indicators achieved positive consensus among experts.
  • Indicators were categorized into diagnostic strategies/seizure classification (8), antiepileptic drug use (9), cognitive/behavioral issues (6), quality of life (6), and specialty referrals (3).

Conclusions:

  • A set of 30 validated performance indicators for pediatric epilepsy care has been identified.
  • Future research should correlate these indicators with clinical outcomes and healthcare utilization in pediatric epilepsy patients.
Abstract

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