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Related Experiment Videos

Self-help groups as mutual support: what do carers value?

Carol Munn-Giddings1, Andrew McVicar

  • 1Department of Advanced Practice and Research, Institute of Health and Social Care, Anglia Ruskin University, Chelmsford, UK. c.munn-giddings@anglia.ac.uk

Health & Social Care in the Community
|January 11, 2007
PubMed
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Self-help groups for carers provide unique peer support, offering empathy and practical information. These groups empower carers, enabling them to transcend their traditional roles and gain valuable community resources.

Area of Science:

  • Social Sciences
  • Health and Social Care
  • Community Psychology

Background:

  • Growth of health and social care self-help/mutual aid groups in the UK since the 1970s.
  • Limited academic and policy interest in the UK despite international trends.
  • Need for understanding the unique contributions of these groups.

Purpose of the Study:

  • To explore the experiences of members in self-help/mutual aid groups for carers.
  • To identify reasons for joining, benefits derived, and comparisons with professional support.
  • To understand how these groups help members transcend their carer roles.

Main Methods:

  • Doctoral study involving two self-help/mutual aid groups for carers in South-East England.
  • Semistructured interviews with 15 active group members.

Related Experiment Videos

  • Exploration of motivations, benefits, and interactions with professionals.

    • Main Results:

    • Members often had prior volunteer experience and joined due to unmet needs from existing support networks.
    • Key benefits included empathy, emotional and practical information, and experiential knowledge.
    • Reciprocity through peer support was a core value, distinct from professional support.
    • Groups provided a unique 'space' allowing members to move beyond their carer identity.

    Conclusions:

    • Self-help/mutual aid groups offer valuable community resources through reciprocal peer support.
    • These benefits are not replicable in professional-client relationships.
    • Findings are relevant to current policies valuing carers' experiential knowledge.