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Paper versus electronic documentation in complex chronic illness: a comparison.

Catherine Arnott Smith1, Saira N Haque

  • 1School of Information Studies, Syracuse, Syracuse, NY, USA.

AMIA ... Annual Symposium Proceedings. AMIA Symposium
|January 24, 2007
PubMed
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This study compared electronic and paper medical records for 5 complex spina bifida patients. Analyzing these records reveals insights into fragmented data within the paper medical record system.

Area of Science:

  • Medical Informatics
  • Clinical Data Management
  • Spina Bifida Research

Background:

  • Patients with spina bifida present complex, chronic health conditions requiring multidisciplinary care.
  • The long-term nature of spina bifida leads to extensive medical documentation across various specialties.
  • Fragmented data in traditional paper medical records poses challenges for comprehensive analysis.

Purpose of the Study:

  • To analyze and compare electronic and paper medical records for clinically complex individuals with spina bifida.
  • To investigate the nature and content of fragmented data within paper-based medical records.
  • To assess the suitability of these records for research on chronic illness management.

Main Methods:

  • Comparative analysis of electronic and paper medical records.

Related Experiment Videos

  • Case study approach involving 5 clinically complex patients with spina bifida.
  • Inpatient and outpatient data collection from a Northeastern urban hospital.

    • Main Results:

    • Electronic records offer a more integrated view compared to fragmented paper records.
    • Paper records contain rich, albeit complex and fragmented, data valuable for research.
    • Significant differences in data accessibility and completeness were observed between record types.

    Conclusions:

    • Electronic health records may improve data integration for complex chronic conditions like spina bifida.
    • Further research is needed to optimize the extraction and utilization of data from fragmented paper records.
    • Understanding data fragmentation is crucial for improving care coordination and research in spina bifida management.