Mealtime experiences of families with dementia

Twenty-three family caregivers participated in interviews to provide their perspectives on mealtimes when caring for someone with dementia (probable Alzheimer's disease, n = 14; senile dementia, n = 2; mixed dementia, n = 2; frontal temporal lobe dementia, n = 3; and Parkinson-related dementia, n = 1). Qualitative analyses described eating conduct changes and strategies to make mealtimes manageable. They also identified that mealtimes provided a social connection for families, although simplification of meals was required. Additionally, pleasure from food consumed was important, although tension existed around providing nutritious meals. Sometimes, caregivers compromised or "gave in"; at other times they needed to "step in" to promote a successful meal. The many changes noted around meals signaled the changing status of their family member. This study provides important insight into the challenges and benefits of mealtimes for those living with dementia in the community.