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[Patient education in cystic fibrosis: what skills for the patient?]
V David1, J Iguenane, S Ravilly
1CRCM Pédiatrique, CHU Nantes, France.
Insights
This study outlines a structured approach to therapeutic education for cystic fibrosis (CF) patients, detailing learning objectives and tools for healthcare providers to enhance patient self-management and outcomes.
Area of Science:
- Pulmonology
- Medical Education
- Patient Care
Context:
- Cystic Fibrosis (CF) management in France has evolved with neonatal screening and specialized centers since 2002.
- Therapeutic education is a key role of these specialized CF centers for patients and families.
Purpose:
- To present learning objectives for cystic fibrosis patients based on essential acquired capabilities.
- To facilitate the implementation of patient education programs within CF centers.
Summary:
- A four-step educational approach is proposed: diagnosis, contract, implementation, and evaluation.
- The approach focuses on patient capabilities and identified objectives.
- Tools for instructors/carers are being developed based on patient capabilities and learning objectives.
Impact:
- Aims to improve patient self-management and adherence to treatment regimens.
- Standardizes therapeutic education for cystic fibrosis patients across specialized centers.
- Enhances the collaborative relationship between patients, families, and healthcare providers.
Introduction:
In France since 2002 two major changes have occurred in the management of patients with cystic fibrosis: systematic neonatal screening and the establishment of specialised CF centres. One of the roles of the CF centres is therapeutic education of the patients and their families.
Methods:
The proposed educational approach consists of 4 steps: an educational diagnosis to assess the patient; an educational contract based on the capabilities and objectives previously identified by the team; implementation of the education programme which organises the teaching of the patient and, finally, evaluation.
Results:
With the goal of facilitating the establishment of patient education in the CF centres we present the learning objectives for patients suffering from cystic fibrosis, based on the capabilities that the patients need to acquire in the course of the education programme.
Conclusion:
Based on the capabilities and learning objectives of the patients the working party are developing valid tools for the instructor/carer. They present the outcomes of the meetings, the educational principles of implementation and the respective roles of the patient and the carer.
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