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Published on: September 30, 2021
Chronic illness experiences, clinical markers and living with hepatitis C
Rebecca Sutton1, Carla Treloar
1University of Bath, UK.
Insights
Living with hepatitis C involves understanding illness trajectories and shifting perspectives. Social impacts, not clinical markers, significantly shape the chronic illness experience.
Area of Science:
- Chronic illness studies
- Hepatitis C research
- Patient experience
Background:
- Hepatitis C presents unique challenges for individuals managing a chronic condition.
- Understanding patient experiences is crucial for effective chronic illness management.
- Two models, illness trajectory and shifting perspectives, offer frameworks for analyzing chronic illness.
Purpose of the Study:
- To explore the lived experiences of individuals with hepatitis C.
- To examine the interplay between clinical markers and perceived health in hepatitis C patients.
- To assess the applicability of illness trajectory and shifting perspectives models to hepatitis C.
Main Methods:
- Qualitative exploration of patient experiences with hepatitis C.
- Analysis of how clinical disease markers relate to self-perceived health.
- Comparison of findings with established chronic illness models.
Main Results:
- Both illness trajectory and shifting perspectives models provide insights into the hepatitis C experience.
- Clinical markers of disease progression had less impact than anticipated on perceived health.
- Social consequences, including isolation and limitations, were highly significant.
Conclusions:
- The illness trajectory and shifting perspectives models are complementary in understanding chronic illness.
- Social consequences of hepatitis C are paramount and should be emphasized in patient care.
- Patient-centered approaches must prioritize social well-being alongside clinical management.
Abstract:
This study explores the experiences of people with hepatitis C within two models of chronic illness--illness trajectory and shifting perspectives--and examines the effects of clinical markers of disease in relation to perceived health. The findings show some support for both models and suggest how they can be seen as complementary and inter-related. The social consequences of living with hepatitis C, such as potential social limitations and isolation, were more significant and had greater impact than clinical markers of disease progress and should be emphasized in understandings of transformation experiences in chronic illness.
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