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Pediatric organ transplant patients and long-term care: a review
1Division of General Pediatrics, Department of Pediatrics, Mount Sinai School of Medicine, One Gustave L. Levy Place, New York, NY 10029-6574, USA. eva.waite@mountsinai.org
Insights
Academic generalists play a vital role in pediatric organ transplant care, addressing unique needs from growth to adulthood transition. This review highlights key considerations for comprehensive "medical home" management.
Area of Science:
- Pediatric medicine
- Transplant surgery
- Adolescent health
Background:
- Organ transplantation in children and adolescents requires specialized, long-term care.
- The
- medical home
- model is crucial for coordinating complex pediatric transplant patient needs.
Purpose of the Study:
- To review the essential role of academic generalists in managing pediatric organ transplant recipients.
- To outline the multifaceted health considerations for these young patients.
Main Methods:
- Literature review focusing on pediatric organ transplantation and generalist care.
- Synthesis of current knowledge on post-transplant complications and management.
Main Results:
- Pediatric organ transplant recipients face unique challenges including growth, psychosocial adjustment, and medical complications.
- Management requires addressing cardiac, renal, endocrine, infectious, and oncologic issues.
- Adherence, vaccination, and reproductive health are critical components of care.
Conclusions:
- Academic generalists are integral to providing holistic care for pediatric organ transplant patients.
- Addressing the spectrum of post-transplant issues is vital for long-term outcomes.
- Further research is needed to optimize care models and address knowledge gaps.
Abstract:
We review the role of the academic generalist in the care of the child or adolescent who has undergone an organ transplant. This care is seen within the context of the "medical home" and the special considerations for pediatric patients. These special considerations include growth and development, psychosocial adjustment, cardiac and renal complications, endocrine problems, medication management and regimen adherence, infectious complications, vaccination, post-transplant malignancies, post-transplant lymphoproliferative disorders, acute post-transplant complications, recurrence, contraception and pregnancy for adolescents, and transition to adulthood. Research needs in this complex area are highlighted.
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