Related Experiment Video
Updated: Jul 16, 2026

Assessing the Coherence of Parents' Short Narratives Regarding their Child Using the Five-Minute Speech Sample Procedure
Published on: September 19, 2019
[Sense of coherence for parents of disabled children]
Else-Karin Grøholt1, Rannveig Nordhagen, Arvid Heiberg
1Divisjon for epidemiologi, Nasjonalt folkehelseinstitutt, Postboks 4404 Nydalen, 0403 Oslo. else-karin.groholt@fhi.no
Insights
Parents of children with chronic illness or disabilities, especially mental disabilities, show a poorer sense of coherence. This vulnerability highlights a need for targeted parental support in Norway.
Area of Science:
- Child Health
- Psychology
- Public Health
Context:
- Limited research exists on the link between childhood chronic illness and parental sense of coherence in Norway.
- This study addresses a gap in understanding parental psychological well-being in the context of pediatric chronic conditions.
Purpose:
- To investigate the association between chronic illness and disabilities in children and their parents' sense of coherence.
- To identify specific child conditions associated with parental vulnerability.
Summary:
- A significant link was found between childhood chronic illness/disabilities and lower parental sense of coherence.
- Parents of mentally disabled children exhibited the highest odds of a poor sense of coherence (OR = 2.05).
- Parents of children with chronic conditions reported higher meaningfulness and comprehension compared to parents of healthy children.
Impact:
- Findings suggest parents of mentally disabled children are a particularly vulnerable group requiring focused support.
- Highlights the importance of parental psychological resources in managing childhood chronic illness and disabilities.
Background:
The link between chronic illness in children and their parents' sense of coherence has not previously been studied in Norway.
Material And Method:
The study population was composed of two different samples. The first sample was randomised and taken from children in Norway aged 2 to 17 years in 1996. The other sample was not randomised and was taken from children aged 4 to 16 years staying at Frambu (national centre of expertise and information for rare disabilities) in the period from ultimo 1995 to primo 1997. Parents answered a questionnaire for both samples.
Results:
The results showed a link between chronic illness and disabilities in children and their parents' poor sense of coherence. High odds for a poor sense of coherence were most common among parents of mentally disabled children (OR = 2.05, KI = 1.14-3.69). Parents of children with chronic illness and disabilities scored higher for the dimensions meaningfulness and comprehension, compared with parents who had children without such problems.
Conclusions:
Our findings indicate that parents of mentally disabled children are more vulnerable than parents of children without a chronic disease or functional impairment, and also more vulnerable than parents of children with other chronic disease/functional impairments.
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