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Ivolving mothers in research studies: practical considerations.

Honor Nicholl1

  • 1School of Nursing and Midwifery, Trinity College, Dublin.

Paediatric Nursing
|March 1, 2007
PubMed
Summary

Qualitative research with mothers of children needing complex care presents unique challenges. Home-based interviews require extensive time and can be disrupted, impacting data quality and researcher roles.

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Area of Science:

  • Qualitative research methodology
  • Pediatric nursing
  • Family caregiving studies

Background:

  • Children with complex needs require extensive home-based care, including airway management, feeding, and seizure control.
  • Mothers often serve as primary caregivers, facing significant time pressures and logistical challenges.

Purpose of the Study:

  • To explore the practical and professional issues encountered by a researcher conducting a qualitative study on mothers' experiences caring for children with complex needs.
  • To highlight the complexities of in-home data collection in this specific population.

Main Methods:

  • Qualitative study design utilizing in-home interviews with mothers.
  • Researcher's reflective experiences as a nurse and qualitative researcher.

Main Results:

  • Home-based data collection significantly exceeded planned time due to child care demands and travel.
  • Interview disruptions from children's care needs and sibling presence affected data quality.
  • The researcher navigated dual roles (nurse/researcher) and ethical considerations regarding participant safety.

Conclusions:

  • Qualitative studies involving mothers of children with complex needs require researchers to anticipate and prepare for substantial practical and professional challenges.
  • Flexibility, extended timelines, and careful consideration of the researcher's role are crucial for successful in-home qualitative research in this field.

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