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The key informant method: a novel means of ascertaining blind children in Bangladesh
Mohammad A Muhit1, Shaheen P Shah, Clare E Gilbert
1International Centre for Eye Health, Clinical Research Unit, Department of Infectious and Tropical Diseases, London School of Hygiene and Tropical Medicine, Keppel Street, London WC1 7HT. UK. Mohammad.Muhit@Lshtm.ac.uk
Insights
Trained local volunteers as key informants (KIs) effectively identified more children with severe visual impairment or blindness (SVI/BL) in Bangladesh. This novel approach yielded a more representative sample, including those with treatable conditions, compared to traditional methods.
Area of Science:
- Ophthalmology
- Public Health
- Epidemiology
Background:
- Traditional methods for identifying children with severe visual impairment or blindness (SVI/BL) primarily relied on special education data, potentially skewing population representation.
- A novel approach using local volunteers as key informants (KIs) was developed to ascertain a more representative sample of SVI/BL children.
Purpose of the Study:
- To compare the demographic characteristics and causes of blindness in children identified through the KI method versus other ascertainment strategies.
- To evaluate the effectiveness of the KI approach in recruiting a broader and more representative population of SVI/BL children.
Main Methods:
- A study was conducted across all 64 districts of Bangladesh to recruit children with SVI/BL.
- Three case ascertainment methods were employed: schools for the blind (SpEdu), community-based rehabilitation (CBR) programs, and trained KIs.
- Data collection utilized the standard WHO/PBL Eye Examination Record.
Main Results:
- A total of 1935 children were recruited, with KIs identifying the majority (64.3%).
- Children recruited by KIs were significantly more likely to be female, of pre-school age, from rural areas, and have multiple impairments compared to those in SpEdu.
- The KI method demonstrated higher odds of ascertaining children with avoidable causes of SVI/BL compared to both SpEdu and CBR methods.
Conclusions:
- The innovative KI approach facilitated one of the largest studies on SVI/BL children to date.
- Key informants proved effective in rapidly recruiting a substantial number of children.
- The findings suggest that the KI method yields a more representative sample of SVI/BL children within the community.
Background:
Most information on the causes of blindness has come from examining children in special education. To obtain a more representative population-based sample of children, a novel method was developed for ascertaining severe visually impaired (SVI) or blind (BL) children by training local volunteers to act as key informants (KIs).
Objective:
To compare the demography and cause of blindness in children recruited by KIs with other ascertainment methods.
Method:
Children with SVI/BL were recruited in all 64 districts of Bangladesh. Three sources for case ascertainment were utilised: schools for the blind (SpEdu), community-based rehabilitation (CBR) programmes and KIs. All data were recorded using the standard WHO/PBL Eye Examination Record.
Results:
1935 children were recruited. Approximately 800 KIs were trained. The majority of the children were recruited by the KIs (64.3%). Children recruited by KIs were more likely to be female (odds ratio (OR) 1.6, p<0.001), of pre-school age (OR 14.1, p<0.001), from rural areas (OR 5.9, p<0.001), be multiply impaired (OR 3.1, p = 0.005) and be suffering from treatable eye diseases (OR 1.3, p = 0.005) when compared with those in SpEdu. Overall a child with an avoidable causes of SVI/BL had 40% (adjusted CI 1.1 to 1.7, p = 0.015) and 30% (CI 1.0 to 1.7, p = 0.033) higher odds of being ascertained using the KIs compared with SpEdu and CBR methods, respectively.
Conclusion:
Using this innovative approach has resulted in one of the largest studies of SVI/BL children to date. The findings indicate that KIs can recruit large numbers of children quickly, and that the children they recruit are more likely to be representative of all blind children in the community.
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