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Continuing Care01:25

Continuing Care

Continuing care describes the variety of health, personal, and social services provided over a prolonged period. The need for continuing care is increasing because people are living longer. Many people do not have families or others to care for them. Continuing care is mainly for patients who are disabled, functionally dependent, or suffering from a terminal disease. It is available within institutional settings or in homes. Examples include nursing centers or facilities, assisted living,...
Nursing Ethical Principles II01:27

Nursing Ethical Principles II

Ethical principles are essential in guiding nurses to fulfill their responsibilities, focusing on the quality of nursing care and decision-making. These principles, including autonomy, beneficence, non-maleficence, justice, and fidelity, shape the ethical framework within healthcare settings.
Consider the following scenario, which illustrates how these principles are applied in the care of Mr. John, a fifty-year-old teacher diagnosed with metastatic liver cancer.
Initially, Mr. John's cancer...
Ethical Issues01:27

Ethical Issues

Nurses are essential in patient care, upholding the ethical principles of their profession and effectively navigating ethical dilemmas. Neglecting ethical issues can lead to inadequate patient care, compromised therapeutic relationships, and moral distress among healthcare workers.
Ethical Concerns in Healthcare:
Ethical Dilemmas I01:17

Ethical Dilemmas I

Ethical dilemmas in nursing are of utmost importance, as they often arise from the tension between adhering to core ethical principles and the practical realities of healthcare delivery. These dilemmas require nurses to navigate complex situations where competing ethical considerations pull them in different directions.
Let us explore some examples to understand the potentially complex moral decisions nurses face.
Take the case of caring for minors, particularly in areas related to reproductive...
Ethical Dilemmas II01:30

Ethical Dilemmas II

Resolving an ethical dilemma in healthcare involves a systematic approach that considers every aspect of the issue, respecting both the patient's needs and values and the healthcare professional's ethical obligations. Here are potential steps to resolve an ethical dilemma:
Kubler Ross's Stages of Dying01:21

Kubler Ross's Stages of Dying

Elisabeth Kübler-Ross significantly advanced psychology's understanding of the process of dying with her influential book, On Death and Dying (1969). She focused on studying terminally ill individuals and outlined five stages commonly experienced when coping with death: denial, anger, bargaining, depression, and acceptance.
In denial, individuals reject the reality of their condition, often thinking, "This isn't true; I feel fine," as a way to protect themselves from emotional distress. Anger...

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Related Experiment Video

Updated: Jul 12, 2026

Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale
19:15

Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale

Published on: August 25, 2014

Infant end-of-life care: the parents' perspective.

C L Brosig1, R L Pierucci, M J Kupst

  • 1Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WI 53201, USA.

Journal of Perinatology : Official Journal of the California Perinatal Association
|April 20, 2007
PubMed
Summary

Parents whose infants died reported positive adaptation and identified key factors for quality end-of-life care, including honesty and empowered decision-making. Medical staff play a crucial role in supporting families during this difficult time.

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Area of Science:

  • Pediatric Palliative Care
  • Bereavement Studies
  • Family-Centered Care

Background:

  • Infant mortality presents profound grief for parents.
  • Understanding parental needs is crucial for improving end-of-life care.
  • Previous research has not fully elucidated parental perspectives on infant end-of-life care.

Purpose of the Study:

  • To identify critical factors parents value in their infant's end-of-life care.
  • To explore parental experiences and adaptation following infant death.
  • To provide insights for enhancing pediatric palliative care.

Main Methods:

  • A qualitative study involving 19 families with infants under one year old who had died.
  • Parents completed the Revised Grief Experience Inventory (RGEI) and participated in semi-structured interviews.
  • Interviews were assessed using the Post-Death Adaptation Scale (PDAS).

Main Results:

  • Parents reported lower grief scores on the RGEI and positive adaptation on the PDAS.
  • Key factors identified by parents included honesty, shared decision-making, and compassionate care.
  • Trust in nursing and physician support, along with a supportive environment, were highly valued.

Conclusions:

  • Parents can demonstrate resilience and adapt positively after the death of an infant.
  • Healthcare professionals can significantly improve infant end-of-life care through attentive and supportive practices.
  • Focusing on parental-reported needs can enhance the quality of care for dying infants and their families.