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The objective burden in partners of heart failure patients; development and initial validation of the Dutch Objective
Marie Louise Luttik1, Tiny Jaarsma, Jan G P Tijssen
1Department of Cardiology, University Medical Center Groningen, University of Groningen, PO BOX 30.001, 9700 RB Groningen, The Netherlands. m.l.a.luttik@thorax.umcg.nl
Insights
A new Objective Burden Inventory was developed to measure the full scope of caregiving demands for partners of Heart Failure (HF) patients, including emotional and practical support. This tool aids in understanding the caregiver situation for better interventions.
Area of Science:
- Cardiology
- Psychology
- Health Services Research
Background:
- Objective caregiver burden measures for Heart Failure (HF) patient partners are scarce.
- Existing tools lack HF-specific caregiving demands.
Purpose of the Study:
- To develop and validate an inventory assessing objective caregiver burden in partners of HF patients.
- To encompass the complete spectrum of potential caregiving demands.
Main Methods:
- Identified six caregiving demand domains.
- Generated items from literature, expert opinion, and existing scales.
- Administered a 50-item inventory to 321 HF patient partners; collected demographic and clinical data.
Main Results:
- A 38-item inventory resulted from component analysis, explaining 43% of variance.
- Four factors emerged: personal care, emotional, motivational, and practical (treatment-related) support.
- Demonstrated good internal consistency and initial validity through associations with external variables.
Conclusions:
- The Objective Burden Inventory is a valid tool for assessing objective caregiving tasks in HF partners.
- It includes crucial aspects like emotional and motivational support.
- Findings can inform the development of targeted caregiver interventions.
Background:
Measures on objective caregiver burden in partners of Heart Failure patients are hardly available and never include HF specific aspects.
Aim:
The main objective of our study was to develop an inventory that assesses the objective caregiver burden of partners of HF patients, including the full range of potential care giving demands.
Methods:
To develop the inventory, six domains of caregiving demands were identified. Items for the domains were generated from the literature, expert opinion and existing scales. The original 50-items self-report inventory was administered to 321 partners of HF patients. Demographic data of HF partners were collected by questionnaire. Clinical data of the HF patients were collected by chart review.
Results:
Component analysis led to exclusion of 12 original items and to a meaningful four-factor solution with a total explained variance of 43%. The components reflected four different kinds of care giving tasks; personal care, emotional, motivational and practical (treatment related) support. They demonstrated good internal consistency and initial validity was supported by a pattern of meaningful associations with external variables.
Conclusion:
The Objective Burden Inventory is a promising inventory to assess objective care giving tasks performed by HF partners, including emotional and motivational support. It provides information on the caregiver situation that may help to develop effective interventions.
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