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[Children with cystic fibrosis: perceptions about multiple hospital admissions]

Ruth Irmgard Bärtschi Gabatz1, Nair Regina Ritter

  • 1Faculdade de Enfermagem da Sociedade Educacional Três de Maio, Três de Maio, RS.

Revista Brasileira De Enfermagem
|May 5, 2007
PubMed

Insights

Children with cystic fibrosis (CF) experience frequent hospitalizations, impacting their sense of freedom. Understanding their perceptions of care can improve their hospital experience through better listening and attention.

Area of Science:

  • Pediatric Healthcare
  • Qualitative Research Methods
  • Chronic Illness Management

Context:

  • Children with cystic fibrosis (CF) undergo numerous hospital admissions throughout their lives.
  • Hospitalization significantly impacts a child's daily life and sense of autonomy.
  • Understanding patient perspectives is crucial for improving healthcare delivery.

Purpose:

  • To explore the perceptions of children with cystic fibrosis regarding their multiple hospital admissions.
  • To identify children's understanding of their treatment and care received during hospitalization.
  • To gather insights into the lived experiences of pediatric patients with CF.

Summary:

  • This descriptive, qualitative study involved seven children aged 6-11 with cystic fibrosis.
  • Data were collected via focused, semi-structured interviews in a pediatric unit.
  • Analysis revealed that children highly value their freedom, which is restricted during hospital stays.

Impact:

  • Findings highlight the need for healthcare providers to acknowledge and address children's feelings of restricted freedom.
  • Emphasizing listening, comprehension, and attention can mitigate the negative impact of hospitalization.
  • This research can inform strategies to enhance the psychosocial well-being of hospitalized children with CF.

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