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Related Experiment Videos

A good death.

David H Gustafson

    Journal of Medical Internet Research
    |May 5, 2007
    PubMed
    Summary
    This summary is machine-generated.

    A good death means no avoidable suffering, aligning with patient wishes. Accessible data and eHealth technology can ease end-of-life challenges for patients and families.

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    Area of Science:

    • Palliative Care
    • Health Informatics
    • Medical Ethics

    Background:

    • The Institute of Medicine defines a good death as free from avoidable suffering, respecting patient and family wishes.
    • Current healthcare systems present significant barriers to alleviating end-of-life stress and suffering.
    • Effective end-of-life care requires addressing both the physical and emotional needs of patients, families, and caregivers.

    Observation:

    • Patients, families, and caregivers often face considerable distress during the end-of-life phase.
    • Existing healthcare structures can inadvertently exacerbate suffering due to lack of support and resources.
    • There is a recognized need for improved strategies to manage the complexities of terminal illness.

    Findings:

    • Data and electronic health (eHealth) technology offer potential solutions to mitigate end-of-life suffering.

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  • Increased accessibility to data and eHealth tools can empower patients and families.
  • Technological integration can facilitate better communication and decision-making at the end of life.

    • Implications:

    • Enhanced accessibility of data and eHealth can significantly improve the quality of care for patients nearing death.
    • Future healthcare models should prioritize the integration of technology to support holistic end-of-life care.
    • Addressing systemic barriers is crucial for realizing the benefits of technology in palliative care and achieving a 'good death'.