The role of patient users in cancer genetics services in primary care

There is much research that suggests all aspects of health care in the National Health Service should have patient user experience and input. This is to make sure service provision meets the needs of the local population. The Oldham Cancer Genetics team felt this was very important when developing a new service. Involving "patient users" meant the service kept the "client" at the centre of the planning process. It ensured all locally produced leaflets, family history questionnaires and patient pathways were tailored to the needs of people in Oldham. The "patient users" were invaluable at awareness-raising sessions for both health professionals and Oldhamers as personal experience always offers maximum impact.