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Updated: Jul 14, 2026

14:32
Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
Published on: February 16, 2011
Hard stories in the workplace.
1University of New England, College of Health Professions, School of Social Work, 716 Stevens Avenue, Portland, ME 04103, USA. scohenkonrad@une.edu
Work (Reading, Mass.)
|May 25, 2007
Summary
Professional attitudes toward suffering impact family caregiver relationships. Understanding caregiver perspectives is crucial for building strong alliances during stressful times, especially when dealing with children
Area of Science:
- Healthcare professional-patient relationships
- Qualitative research methodologies
- Family caregiver support systems
Background:
- Healthcare provider relationships with family caregivers often initiate during periods of significant distress.
- Professional attitudes and responses to patient and family suffering are critical factors in relationship development.
- The impact of exposure to difficult narratives ('hard stories') on these professional-caregiver alliances requires examination.
Purpose of the Study:
- To examine existing literature on healthcare professionals' attitudes towards suffering.
- To explore how exposure to family caregivers' 'hard stories' influences the formation and quality of alliances.
- To highlight caregiver perspectives on competent, meaningful, and mutual relationships.
Main Methods:
- Literature review on professional attitudes and responses to suffering.
- Qualitative, phenomenological study involving mothers of children with acquired physical disabilities.
- Analysis of first-person accounts to identify key qualities of effective caregiver relationships.
Main Results:
- Caregivers identify specific qualities that foster competent, meaningful, and mutual relationships with healthcare professionals.
- Bearing witness to 'hard stories' is facilitated by these identified relational qualities.
- Professional attitudes significantly shape the caregiver's experience and the alliance's strength.
Conclusions:
- Understanding and integrating caregiver perspectives is essential for healthcare providers.
- Developing empathetic and responsive attitudes towards suffering enhances professional-caregiver alliances.
- Effective alliances enable healthcare providers to better support families through challenging experiences.
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