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Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
Published on: February 16, 2011
The lived experience of recapturing self-care.
Susanne Guidetti1, Eric Asaba, Kerstin Tham
1Department of Occupational Therapy, Karolinska University Hospital, Department of Neurobiology, Care Sciences and Society, Division of Occupational Therapy, Karolinska Institutet, Fack 23 200, 141 83 Huddinge, Sweden. susanne.guidetti@ki.se
Summary
Recapturing self-care after stroke or spinal cord injury (SCI) involves adapting to a new body, persistent effort, regaining control, and navigating uncertainty. Early rehabilitation support is crucial for successful self-care recovery.
Area of Science:
- Rehabilitation Medicine
- Phenomenology
- Psychology
Background:
- Stroke and spinal cord injury (SCI) significantly impact patients' ability to perform daily self-care activities.
- The initial recovery phase (1-3 months post-onset) is critical for regaining independence in self-care.
- Understanding the lived experience of patients is essential for effective rehabilitation strategies.
Purpose of the Study:
- To identify the core characteristics of the lived experience of recapturing self-care post-stroke or SCI.
- To explore the process and challenges individuals face when relearning self-care.
- To inform clinical practice and improve individualized self-care interventions.
Main Methods:
- Qualitative study employing the Empirical, Phenomenological, and Psychological (EPP) method.
- In-depth interviews were conducted with individuals recovering from stroke (n=5) and SCI (n=6).
- Participants were within 1-3 months of their injury onset and actively engaged in regaining self-care.
Main Results:
- Four key characteristics emerged: familiarization with the altered body, active self-care through trial and error, reclaiming personal control, and experiencing ongoing uncertainty.
- Gaining familiarity with the 'new body' through practical experience is a fundamental prerequisite for recapturing self-care.
- The process is iterative, involving repeated attempts and adaptation.
Conclusions:
- Successful self-care recovery necessitates adapting to bodily changes and actively engaging in the process.
- Familiarity with the post-injury body is crucial for effective self-care.
- Rehabilitation programs should prioritize and facilitate individualized self-care interventions to support patients' recovery journey.
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