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Paediatric HIV/AIDS disclosure: towards a developmental and process-oriented approach

A Lesch1, L Swartz, A Kagee

  • 1Department of Psychology, University of Stellenbosch, Matieland, South Africa. alesch@sun.ac.za

AIDS Care
|June 19, 2007
PubMed

Insights

Disclosing HIV diagnosis to children is crucial as more children with HIV/AIDS live longer. A process-oriented approach, considering cognitive development, is recommended for age-appropriate HIV information delivery.

Area of Science:

  • Pediatric Infectious Diseases
  • Child Psychology
  • Public Health

Background:

  • Antiretroviral therapy (ART) availability increases lifespan for children with HIV/AIDS.
  • Disclosure of HIV status to infected children is a growing concern.
  • Cognitive development theories inform disclosure strategies.

Purpose of the Study:

  • To review literature on HIV disclosure to children.
  • To advocate for a process-oriented disclosure approach.
  • To address challenges faced by healthcare workers and caregivers.

Main Methods:

  • Literature review on HIV disclosure in pediatric populations.
  • Analysis of disclosure challenges through the lens of cognitive development.
  • Examination of healthcare provider and caregiver perspectives.

Main Results:

  • Healthcare workers generally support disclosure, while caregivers are often more reluctant.
  • Disclosure involves complex information control and best interest considerations.
  • Contradictory views on disclosure exist between healthcare providers and caregivers.

Conclusions:

  • A process-oriented approach is needed for discussing HIV with children.
  • Practical interventions are necessary to support age-appropriate pediatric HIV disclosure.
  • Effective disclosure requires tailored information delivery based on cognitive development.

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