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Related Experiment Videos

Stigma Scale of Epilepsy: validation process.

Paula T Fernandes1, Priscila C B Salgado, Ana L A Noronha

  • 1Department of Neurology, Faculty of Medicine, UNICAMP, Campinas, SP, Brazil.

Arquivos De Neuro-Psiquiatria
|June 28, 2007
PubMed
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This study validated the Stigma Scale of Epilepsy (SSE), finding it reliable for measuring epilepsy stigma in patients and the community. The SSE can be used in future interventions to reduce stigma.

Area of Science:

  • Neurology
  • Psychiatry
  • Health Psychology

Background:

  • Epilepsy stigma significantly impacts patients' quality of life.
  • Quantifying and understanding epilepsy stigma is crucial for developing effective interventions.

Purpose of the Study:

  • To validate the Stigma Scale of Epilepsy (SSE).
  • To assess the scale's reliability and utility in measuring perceived stigma.

Main Methods:

  • The Stigma Scale of Epilepsy (SSE) was administered to 40 adults with epilepsy and 40 community members.
  • Interviews were conducted individually by a psychologist, with participants recording their answers.
  • The scale has 24 items and took approximately ten minutes to complete.

Main Results:

Related Experiment Videos

  • The SSE demonstrated high internal consistency with Cronbach's alpha coefficients of 0.88 (epilepsy patients) and 0.81 (community).
  • Mean stigma scores were 46 (SD=18.22) for patients and 49 (SD=13.25) for the community.
  • Scores range from 0 (no stigma) to 100 (maximum stigma).

Conclusions:

  • The Stigma Scale of Epilepsy (SSE) possesses satisfactory content validity and high internal consistency.
  • The SSE effectively quantifies perceived stigma among individuals with epilepsy and the general population.
  • This validated scale can inform interventional studies aimed at mitigating epilepsy-related stigma.