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Recurrence risk in Autism Spectrum Disorder: a study of parental knowledge
Charlotte Whitelaw1, Peter Flett, David J Amor
1Calvary Health Care Tasmania, Hobart, Tasmania, Australia.
Aim:
To describe recurrence risk information currently being obtained by families affected by Autism Spectrum Disorder (ASD).
Methods:
Structured telephone interview of parents of 21 children who received a diagnosis of ASD at Calvary Health Care Tasmania, Hobart, Australia between May 2005 and May 2006.
Results:
Only one of the 21 parents knew their true recurrence risk. Many overestimated their risk substantially, and in four cases this had led to a decision against increasing family size. Eleven parents said they had received no information about recurrence risk, and only one cited medical practitioners as a source of information about recurrence risk.
Conclusion:
Current provision of information about recurrence risk to families affected by ASD is inadequate.
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