Adjustment to appearance changes resulting from meningococcal septicaemia during adolescence: a qualitative study

Melissa Wallace1, Diana Harcourt, Nichola Rumsey

  • 1Centre for Outcomes Research and Effectiveness, University College, London, UK. m.wallace@ucl.ac.uk

Abstract

Insights

Adolescents surviving meningococcal septicaemia (MS) face life-altering changes and scarring. Despite challenges, they show remarkable resilience in adjusting to altered appearances and finding new meaning post-illness.

Area of Science:

  • Psychology
  • Medicine
  • Sociology

Background:

  • Meningococcal septicaemia (MS) is a rapidly progressing, life-threatening illness.
  • Survivors often experience severe scarring, requiring interventions like skin grafting or amputation.
  • The psychosocial impact of MS, particularly on adolescents, is under-researched.

Purpose of the Study:

  • To explore the psychosocial impact of meningococcal septicaemia on adolescents.
  • To understand adjustment to permanently altered appearance after a life-threatening illness.

Main Methods:

  • Conducted 11 in-depth, semi-structured interviews with adolescent survivors (7 female).
  • Utilized Interpretative Phenomenological Analysis (IPA) for data analysis.

Main Results:

  • Identified significant impacts on finding meaning, life evaluation, and adjusting to altered appearance.
  • Participants discussed pre- and post-MS self-perception, assimilation of altered self, and scar symbolization.
  • Healthcare provision emerged as a significant theme.

Conclusions:

  • Adolescent survivors exhibit high resilience in the face of MS.
  • Mechanisms of resilience, including social comparison, warrant further investigation.

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