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Adjustment to appearance changes resulting from meningococcal septicaemia during adolescence: a qualitative study
Melissa Wallace1, Diana Harcourt, Nichola Rumsey
1Centre for Outcomes Research and Effectiveness, University College, London, UK. m.wallace@ucl.ac.uk
Statement Of Purpose:
Meningococcal Septicaemia (ms) is an acute, life-threatening illness characterized by rapid progression and if not treated swiftly can result in death within hours. Those who survive may require skin grafting or amputation of digits and limbs, and be left with severe scarring. Despite the trauma associated with ms, surprisingly little research has been conducted to determine its psychosocial impact. This study therefore explored the impact of ms during adolescence, with an emphasis on adjustment to a permanently altered appearance following a life-threatening illness.
Methods Used:
Eleven in-depth, semi-structured interviews were conducted with adolescents (7 female) and analysed using Interpretative Phenomenological Analysis (IPA).
Results:
Interviews highlighted the life-altering nature of the experience and the impact this had on finding meaning, life evaluation and adjustment to an altered appearance. Participants spoke at length about differences in themselves, 'pre and post ms', how they assimilated their altered self into life after ms, and the symbolisation attributed to their scars. Issues relating to healthcare provision also arose as a significant theme.
Discussion:
Participants demonstrated a high degree of resilience in response to their experiences. The means by which this has been achieved, including social comparison are examined in detail and offer a fertile area for further research.
Insights
Adolescents surviving meningococcal septicaemia (MS) face life-altering changes and scarring. Despite challenges, they show remarkable resilience in adjusting to altered appearances and finding new meaning post-illness.
Area of Science:
- Psychology
- Medicine
- Sociology
Background:
- Meningococcal septicaemia (MS) is a rapidly progressing, life-threatening illness.
- Survivors often experience severe scarring, requiring interventions like skin grafting or amputation.
- The psychosocial impact of MS, particularly on adolescents, is under-researched.
Purpose of the Study:
- To explore the psychosocial impact of meningococcal septicaemia on adolescents.
- To understand adjustment to permanently altered appearance after a life-threatening illness.
Main Methods:
- Conducted 11 in-depth, semi-structured interviews with adolescent survivors (7 female).
- Utilized Interpretative Phenomenological Analysis (IPA) for data analysis.
Main Results:
- Identified significant impacts on finding meaning, life evaluation, and adjusting to altered appearance.
- Participants discussed pre- and post-MS self-perception, assimilation of altered self, and scar symbolization.
- Healthcare provision emerged as a significant theme.
Conclusions:
- Adolescent survivors exhibit high resilience in the face of MS.
- Mechanisms of resilience, including social comparison, warrant further investigation.
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