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The impact of percutaneous endoscopic gastrostomy feeding in children; the parental perspective

A M Brotherton1, J Abbott, P J Aggett

  • 1University of Central Lancashire, Preston, Lancashire, UK. ambrotherton@uclan.ac.uk

Child: Care, Health and Development
|August 30, 2007
PubMed

Insights

Percutaneous endoscopic gastrostomy (PEG) feeding in children presents challenges for families, including sleep disruption and social difficulties. Parents highlighted the significant impact on family life, necessitating a new support framework.

Area of Science:

  • Pediatric Gastroenterology
  • Family Health
  • Qualitative Research

Background:

  • Increasing use of percutaneous endoscopic gastrostomy (PEG) feeding for children in the UK.
  • Need to understand the impact of PEG feeding on children's and families' daily lives.

Purpose of the Study:

  • To explore parents' perspectives on how PEG feeding affects daily family life.
  • To develop a conceptual framework for assessing this impact.

Main Methods:

  • Cross-sectional qualitative design with purposive sampling.
  • Semi-structured interviews with 24 parents.
  • Descriptive and thematic data analysis.

Main Results:

  • Common PEG feeding issues: vomiting (71%), site infections (46%), leakage (54%).
  • Key impacts: disturbed sleep, restricted outings, feeding location challenges, childcare issues, social stigma, family strain.
  • Parents focused on the impact on themselves and the family unit.

Conclusions:

  • A parent-informed assessment framework was developed to evaluate feeding's impact on family life.
  • Identifies support needs for families with children on PEG feeding.
  • Effective support requires collaboration among healthcare, social care, and support groups.
Abstract

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