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Assessing family history of heart disease in primary care consultations: a qualitative study
Ruth Hall1, Paula M Saukko, Philip H Evans
1ESRC Centre for Genomics in Society, Byrne House, University of Exeter, Exeter, UK.
Insights
Primary care clinicians need better communication strategies for discussing family history of coronary heart disease (CHD). Current methods leave patients with unanswered questions about genetic and environmental risk factors.
Area of Science:
- Cardiology
- Primary Care Medicine
- Health Communication
Background:
- Family history of coronary heart disease (CHD) is a key factor in primary prevention guidelines for identifying at-risk individuals.
- Current guidelines emphasize assessing family history for CHD risk.
Purpose of the Study:
- To investigate how clinicians and patients perceive and discuss family history within the context of CHD risk assessment in primary care settings.
- To identify communication gaps and patient concerns regarding family history assessment.
Main Methods:
- Qualitative study involving 21 primary care patients and 7 clinicians (GPs and practice nurses).
- Utilized validated family history questionnaires, video-recorded consultations, and post-consultation semi-structured interviews.
- Study conducted across four general practices in South West England.
Main Results:
- Patients and clinicians generally agreed on risk levels and reduction strategies, with most patients satisfied with the assessment.
- Identified three key issues: unexplored patient explanations of family history, infrequent discussion of the link between family history and other risk factors (e.g., smoking, cholesterol), and lack of explanation on integrating family history into overall cardiovascular risk.
- These issues led to patient concerns and unanswered questions, particularly when few modifiable risk factors were present.
Conclusions:
- Clinicians often lack effective communication strategies (rhetoric) to discuss family history, encompassing genetic and environmental influences and their relation to other risk factors.
- This communication gap creates patient uncertainty with potential clinical and social implications.
- There is a clear need for improved guidance and training for primary care clinicians on conducting comprehensive family history assessments.
Background:
Current primary prevention guidelines recommend the assessment of family history of coronary heart disease (CHD) to identify at-risk individuals.
Objective:
To examine how clinicians and patients understand and communicate family history in the context of CHD risk assessment in primary care.
Methods:
A qualitative study. Patients completed a validated family history questionnaire. Consultations with clinicians were video recorded, and semi-structured interviews conducted with patients after consultation. The participants were 21 primary care patients and seven primary care clinicians (two practice nurses, five GPs). Four practices in South West England.
Results:
Patients and clinicians usually agreed about the patient's level of risk and how to reduce it. Patients were mostly satisfied with their consultations and having their family history assessed. However, three issues were identified from the consultations which contributed to concerns and unanswered questions for patients. Problems arose when there were few modifiable risk factors to address. Firstly, patients' explanations of their family history were not explored in the consultation. Secondly, the relationship between the patient's family history and their other risk factors, such as smoking or cholesterol, was rarely discussed. Thirdly, clinicians did not explain the integration of family history into the patient's overall cardiovascular disease risk.
Conclusions:
Clinicians appeared to lack a rhetoric to discuss family history, in terms of capturing both genetic and environmental factors and its relation to other risk factors. This created uncertainties for patients and carries potential clinical and social implications. There is a need for better guidance for primary care clinicians about family history assessment.
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