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Assessment of mother and father concern in childhood hydrocephalus

Abhaya V Kulkarni1

  • 1Division of Child Health and Evaluative Sciences, Hospital for Sick Children, University of Toronto, Room 1503, 555 University Avenue, M5G 1X8 Toronto, ON, Canada. abhaya.kulkarni@sickkids.ca

Quality of Life Research : an International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation
|September 11, 2007
PubMed

Insights

Parental concern in children with hydrocephalus varies widely. Child health factors, including cognitive and social-emotional well-being, significantly influence parental worry levels.

Area of Science:

  • Pediatric chronic illness management
  • Child neurology
  • Parental psychology

Background:

  • Parental concern is crucial in managing children with chronic illnesses.
  • This study quantitatively assessed parental concerns in pediatric hydrocephalus.

Purpose of the Study:

  • To quantitatively assess parental concerns in children with hydrocephalus using the Hydrocephalus Concerns Questionnaire for parents (HCQ-P).

Main Methods:

  • Parents of 332 children with hydrocephalus completed the HCQ-P over a 12-month period.
  • Data analyzed using multivariable regression models to identify associations with parental concern.

Main Results:

  • Maternal and paternal concern scores were widely distributed, with means of 0.53 and 0.51 respectively.
  • Worse child cognitive and social-emotional health were associated with greater maternal and paternal concern.
  • Paternal concern was also linked to frequent seizures, younger age at first surgery, and endoscopic treatment.

Conclusions:

  • Parental concern in pediatric hydrocephalus is highly variable.
  • Child health factors significantly explain the variability in parental concern.
Abstract

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