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E-Patient Counseling Trial (E-PACO): Computer Based Education versus Nurse Counseling for Patients to Prepare for Colonoscopy
Published on: August 1, 2019
A multiprofessional education programme for patients with inflammatory bowel disease: a randomized controlled trial
Susanna Jäghult1, Jenny Larson, Regina Wredling
1Karolinska Institutet, Department of Clinical Sciences, Danderyd University Hospital, Stockholm, Sweden. susanna.jaghult@ds.se
A new education program for inflammatory bowel disease (IBD) patients did not significantly improve quality of life. However, patients highly valued the program, leading to its integration into regular clinic care.
Area of Science:
- Gastroenterology
- Health Services Research
- Patient Education
Background:
- Inflammatory bowel disease (IBD) significantly impairs patients' health-related quality of life (HRQoL).
- Improved disease-related information is hypothesized to enhance HRQoL in IBD patients.
- Newly diagnosed IBD patients require accessible and effective educational resources.
Purpose of the Study:
- To develop a clinic-applicable educational program for newly diagnosed inflammatory bowel disease (IBD) patients.
- To evaluate the program's impact on the health-related quality of life (HRQoL) of IBD patients.
Main Methods:
- Ninety-three IBD patients in remission were randomized into an intervention (multiprofessional education program) and control (regular information) group.
- Health-related quality of life (HRQoL) was assessed using four questionnaires at baseline, 1 month (intervention group only), and 6 months.
- Statistical comparison of HRQoL between groups was performed at the 6-month follow-up.
Main Results:
- No statistically significant differences in health-related quality of life (HRQoL) were observed between the intervention and control groups at 6 months.
- The multiprofessional education program received high patient appreciation.
- The program's positive reception suggests potential benefits not captured by current HRQoL measures or patient cohorts.
Conclusions:
- The developed education program did not demonstrate a significant improvement in health-related quality of life (HRQoL) for inflammatory bowel disease (IBD) patients compared to standard care.
- Potential reasons for the lack of significant findings include questionnaire sensitivity limitations or variations in patient clinical remission status.
- Despite no statistically significant HRQoL improvement, the program's high patient satisfaction has led to its adoption into routine clinical practice.
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