[Follow-up network for newborns at risk for handicap in a French region]

J-C Rozé1, V Bureau-Rouger, A Beucher

  • 1Service de néonatalogie, hôpital Mère-Enfant. CHU de Nantes, France, CIC, thématique pédiatrique, CHU de Nantes - INSERM. jeanchristophe.roze@chu-nates.fr

Insights

A regional follow-up network for high-risk newborns demonstrated feasibility and effectiveness in detecting developmental issues by nine months corrected age. Parent satisfaction was high, indicating successful early intervention and care initiation for infants with disabilities.

Area of Science:

  • Neonatal development
  • Public health networks
  • Early intervention services

Background:

  • Perinatal health networks require downstream follow-up systems for newborns at risk of handicap.
  • A regional follow-up network was established in the Pays de la Loire region in 2003.

Purpose of the Study:

  • Evaluate the feasibility of a regional newborn follow-up network.
  • Assess the network's capacity to detect infants with incapacitating conditions by nine months corrected age.
  • Gauge parental satisfaction with the implemented follow-up network.

Main Methods:

  • A standardized assessment tool based on the Amiel Tison method was utilized.
  • Infants included from March 2003, reaching two years corrected age by September 2006, were analyzed.
  • Parental satisfaction surveys were conducted for infants with normal or abnormal neuromotor outcomes.

Main Results:

  • Out of 1339 infants, 1185 (88.4%) completed the two-year follow-up.
  • 7.3% exhibited pathological development, and 4.5% had suspect neuromotor examinations.
  • 11% received care proposals, enabling early intervention for 65% of those with pathological development.

Conclusions:

  • The network successfully met its objective, enrolling 2.2% of regional newborns with low follow-up loss.
  • The network demonstrated good capacity for early detection and intervention initiation.
  • Parental engagement was significant, with high reported satisfaction, though network efficiency requires further improvement.
Abstract

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