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[Role of the patients' associations (CLAIR consortium)]

S Duthoit1, C Delhove-Droulez, A M Verbeeck

  • 1Confédération pour la Lutte contre les Affections Inflammatoires Rhumatismales (CLAIR a.s.b.l.), Templeuve.

Revue Medicale De Bruxelles
|October 26, 2007
PubMed

Insights

The Confederation Against Rheumatoid Inflammatory Diseases (CLAIR) unites patients and professionals to support those with chronic inflammatory conditions. CLAIR aims to raise public and medical awareness, advocate for policy changes, and fund research for better treatments.

Area of Science:

  • Rheumatology
  • Immunology
  • Public Health

Context:

  • The Confederation Against Rheumatoid Inflammatory Diseases (CLAIR) addresses the needs of over 100,000 individuals affected by chronic inflammatory diseases.
  • CLAIR comprises patient associations (Lupus Erythematosus, Sclerodermia, Rheumatoid Arthritis) and the 'Patient Partner Program', involving patients, doctors, paramedics, relatives, and volunteers.

Purpose:

  • To foster solidarity, hope, and support networks for patients with rheumatoid inflammatory diseases.
  • To enhance public and medical community awareness regarding the significance of early diagnosis and aggressive treatment for these chronic conditions.
  • To engage with policymakers to improve recognition and support for chronic inflammatory diseases and to fund collaborative research initiatives.

Summary:

  • CLAIR is an organization dedicated to supporting individuals with rheumatoid inflammatory diseases, including Lupus Erythematosus, Sclerodermia, and Rheumatoid Arthritis.
  • The organization focuses on building a supportive community, increasing disease awareness, advocating for prompt medical intervention, and promoting research.
  • Key activities include public education, medical professional outreach, political engagement, and supporting joint research projects among member associations.

Impact:

  • Increased public and medical awareness of chronic inflammatory diseases.
  • Improved patient support systems and a stronger sense of community.
  • Advocacy for better healthcare policies and increased funding for medical research in rheumatology and related fields.

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