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Published on: September 22, 2023
Parental refusal of medical treatment for a newborn
John J Paris1, Michael D Schreiber, Michael P Moreland
1Boston College, Chestnut Hill, MA 02167, USA. parisj@bc.edu
Insights
Parental or physician decisions in infant care conflicts have evolved. Current guidelines support parental involvement and physician judgment, prioritizing the infant
Area of Science:
- Medical Ethics
- Pediatric Care
- Neonatal Decision-Making
Background:
- Conflicts arise between parents and physicians regarding appropriate medical care for infants.
- Historical standards for decision-making in pediatric cases have varied significantly over time.
Purpose of the Study:
- To trace the evolution of standards guiding medical decision-making in infant care conflicts.
- To analyze the shift in policy from parental autonomy to mandated life support and back to nuanced guidelines.
Main Methods:
- Historical review of key ethical essays and policy regulations concerning pediatric medical decision-making.
- Analysis of the legal and ethical frameworks from 1973 to 2007.
Main Results:
- Early proposals (1973) favored parental discretion in infant care decisions.
- Mid-period regulations (Baby Doe Regs, 1980s) mandated life continuation.
- Recent guidelines (American Academy of Pediatrics, 2007) support non-intervention or withdrawal of intensive care for high-risk newborns.
Conclusions:
- The standard for infant care decisions has shifted from broad parental authority to stricter mandates and now towards a balance of parental and physician judgment.
- Support is expressed for the 2007 American Academy of Pediatrics guidelines, emphasizing individualized care for high-risk newborns.
Abstract:
When there is a conflict between parents and the physician over appropriate care due to an infant whose decision prevails? What standard, if any, should guide such decisions?This article traces the varying standards articulated over the past three decades from the proposal in Duff and Campbell's 1973 essay that these decisions are best left to the parents to the Baby Doe Regs of the 1980s which required every life that could be salvaged be continued. We conclude with support for the policy articulated in the 2007 guidelines of the American Academy of Pediatrics on non-intervention or withdrawal of intensive care for high-risk newborns.
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