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Issues in data sharing and access: an industry perspective.

W E Fayerweather1, S L Tirey, J K Baldwin

  • 1E. I. duPont de Nemours & Company, Wilmington, DE 19898.

Journal of Occupational Medicine. : Official Publication of the Industrial Medical Association
|December 1, 1991
PubMed
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Sharing epidemiologic data is complex, with no clear consensus. This paper explores data sharing types, benefits, barriers, and alternatives to raw data sharing.

Area of Science:

  • Epidemiology
  • Public Health Data Management

Background:

  • Data sharing and access in epidemiology are complex issues.
  • Lack of consensus exists within the industrial and research communities regarding data sharing protocols.

Purpose of the Study:

  • To introduce the multifaceted issues surrounding epidemiologic data access and sharing.
  • To provide personal perspectives on the advantages and barriers to data openness.
  • To discuss alternatives that minimize the need for raw data sharing.

Main Methods:

  • Literature review on data sharing models.
  • Analysis of advantages and barriers to data openness.
  • Exploration of alternative data access strategies.

Main Results:

Related Experiment Videos

  • Identified various types of data sharing models.
  • Outlined key advantages and significant barriers to open data access.
  • Presented alternative approaches to data sharing.

Conclusions:

  • Effective epidemiologic data sharing requires addressing complex challenges.
  • Understanding the benefits and obstacles is crucial for developing robust data access policies.
  • Alternative methods can facilitate information dissemination while mitigating risks associated with raw data sharing.