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Updated: Jul 10, 2026

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting
Published on: June 6, 2020
People with learning disabilities, carers and care workers awareness of health risks and implications for primary
Anita F Young1, Rosemary A Chesson, Anthony J Wilson
1Health Services Research Group and Elmwood Learning Disabilities Service, Royal Cornhill Hospital, 26 Cornhill Road, Aberdeen AB25 2ZH. ext.young@rgu.ac.uk
Background:
People with learning disabilities have become increasingly exposed to health risk with the move to community living. Yet, health promotion is poorly developed with a heavy reliance on primary care.
Objectives:
To elicit the perceptions of people with learning disabilities, carers and care workers regarding risk factors associated with cardiac disease.
Methods:
A qualitative approach was adopted incorporating semi-structured interviews based on vignettes. Twenty people with mild learning disabilities, 10 carers and 10 care workers were recruited. Data were analysed using Miles and Huberman's five-fold process.
Results:
In total, 29 women and 11 men were interviewed. A range of health risks was identified with different patterns across groups. There were common concerns around diet. Approximately 50% of participants also had worries regarding 'excessive computer usage', often related to physical inactivity, and a similar proportion identified social isolation as a risk. The importance of safeguarding personal autonomy was stressed in all three groups.
Conclusion:
We demonstrated the feasibility of engaging with people with mild learning disabilities regarding health improvement. Participants recognized not only risks but also the subtle interplay of different factors, reflecting a grasp of the complexity of health promotion. Approaches within primary care to health improvement need to acknowledge this level of awareness.
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