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The Seizures and Epilepsy Education (SEE) program for families of children with epilepsy: a preliminary study

Cheryl P Shore1, Susan M Perkins, Joan K Austin

  • 1Indiana University School of Nursing, NU312 D, 1111 Middle Drive, Indianapolis, IN 46202, USA. cpshore@iupui.edu

Epilepsy & Behavior : E&B
|December 19, 2007
PubMed

Insights

The Seizures and Epilepsy Education (SEE) program improved quality of life for children with epilepsy and their families. Parents reported better emotional well-being and increased knowledge about epilepsy management.

Area of Science:

  • Pediatric Neurology
  • Child Psychology
  • Family Health Education

Background:

  • Epilepsy significantly impacts a child's quality of life and family dynamics.
  • Effective management and support are crucial for families navigating childhood epilepsy.
  • Existing educational programs require evaluation for their impact on families.

Purpose of the Study:

  • To assess the Seizures and Epilepsy Education (SEE) program's effectiveness.
  • To evaluate improvements in quality of life, epilepsy management, and healthcare utilization.
  • To understand the program's impact on both children with epilepsy and their parents.

Main Methods:

  • A cohort of 15 families with a child diagnosed with epilepsy participated.
  • Participants included at least one parent and children aged 12 years or older.
  • Data were collected using research instruments at baseline, 1 month, and 6 months post-program.

Main Results:

  • Both parents and children reported enhanced quality of life, particularly concerning child mental health.
  • Parents experienced a reduced emotional burden, fewer anxieties, and increased epilepsy-related knowledge.
  • Improvements in health care utilization were also noted, though not detailed.

Conclusions:

  • The Seizures and Epilepsy Education (SEE) program shows promise in benefiting families of children with epilepsy.
  • The program appears to positively influence psychosocial aspects and knowledge for families.
  • Further research with a stronger design is recommended to confirm these findings.

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