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Prenatal testing for adult-onset conditions: cui bono?
1Department of Philosophy, University at Albany/SUNY, Albany, NY 12222, USA. steinbock@albany.edu
Insights
Prenatal genetic testing for untreatable adult-onset diseases in children is ethically questionable. The potential benefits for parents, society, or the child do not justify such testing, challenging current bioethical consensus.
Area of Science:
- Bioethics
- Medical Genetics
- Reproductive Medicine
Background:
- A consensus exists against testing minors for untreatable adult-onset genetic diseases.
- This paper examines the ethical considerations of prenatal genetic testing for such conditions.
Purpose of the Study:
- To analyze the ethical justifications for prenatal genetic testing for untreatable adult-onset genetic diseases.
- To evaluate potential beneficiaries: prospective parents, society, or the child.
Main Methods:
- Ethical analysis of reproductive autonomy.
- Examination of societal benefits and child welfare in genetic testing contexts.
Main Results:
- Prenatal testing for untreatable adult-onset genetic diseases lacks clear justification.
- Arguments based on parental reproductive autonomy, societal benefit, or the child's best interest are not compelling.
Conclusions:
- Prenatal genetic testing for untreatable adult-onset genetic diseases is ethically problematic.
- The potential benefits do not outweigh the ethical concerns, challenging established bioethical norms.
Abstract:
There is a widespread consensus in the medical and bioethical communities that minor children should not be tested for untreatable adult-onset genetic diseases. This paper looks at the implications for prenatal genetic testing. What is the purpose of such testing? Who is intended to benefit? Is it the prospective parents, to enable them to make informed reproductive decisions? Or society, by reducing the prevalence of genetic diseases? Or can prenatal testing for adult-onset conditions be done 'for the sake of the child'? While the last justification, if plausible, would provide a better justification than the other two, it is not clear that even reproductive autonomy justifies prenatal genetic testing for untreatable adult-onset diseases. Nor can a rationale be provided by the other possibilities since neither society nor the future child is likely to be benefited by such testing.
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