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Ashley X
Kristi L Kirschner1, Rebecca Brashler, Teresa A Savage
1Donnelley Family Disability Ethics Program, Rehabilitation Institute of Chicago, Chicago, Illinois, USA.
American Journal of Physical Medicine & Rehabilitation
|December 20, 2007
Summary
The Ashley Treatment, a controversial medical intervention for a child with disabilities, raises ethical questions for medical professionals and disability specialists. This analysis examines stakeholder perspectives on the growth attenuation therapy.
Area of Science:
- Medical Ethics
- Pediatric Rehabilitation
- Disability Studies
Background:
- The "Ashley Treatment" involves growth attenuation therapy for a child with severe developmental disabilities.
- The case gained public attention through a medical journal publication and parental blog.
Observation:
- The treatment involved surgical and hormonal interventions to limit growth.
- Parents cited quality of life and future care considerations as rationale.
Findings:
- A disability ethics approach reveals diverse stakeholder perspectives, including parents, physicians, and bioethics committees.
- The case highlights complex ethical dilemmas in pediatric medical decision-making for individuals with disabilities.
Implications:
- Physiatrists and rehabilitation professionals must navigate complex ethical considerations in similar cases.
- This case prompts critical reflection on medical interventions, parental rights, and the ethics of care for individuals with extensive disabilities.
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